Jonathan Sanchez testifies about his ongoing medical care in the U.S. for cystic fibrosis at a House Oversight and Reform Civil Rights and Civil Liberties Subcommittee hearing on U.S. President Donald Trump's administration changes to Medical Deferred Action policies for critically ill children, on Capitol Hill in Washington, U.S. September 11, 2019. REUTERS/Jonathan Ernst 

An airway clearance vest system that is used by patients suffering from cystic fibrosis, is seen inside a charity in Gaza City July 2, 2017. Picture taken July 2, 2017. REUTERS/Mohammed Salem 

Palestinian boy Ahmed Abbas, who suffers from cystic fibrosis, sleeps as he lies on a hospital bed in Gaza City July 2, 2017. Picture taken July 2, 2017. REUTERS/Mohammed Salem 

Palestinian boy Mohammad Shanty (R) and his brother Mustafa, who suffer from cystic fibrosis, sit next to their mother after receiving oxygen therapy in Gaza City July 2, 2017. Picture taken July 2, 2017. REUTERS/Mohammed Salem 

Palestinian boy Mohammad Shanty, who suffers from cystic fibrosis, sits next to his mother after receiving oxygen therapy during a power cut in their family house, which is equipped with a backup battery-powered system, in Gaza City July 2, 2017. Picture taken July 2, 2017. REUTERS/Mohammed Salem 

The mother of Palestinian boy Ahmed Abbas, who suffers from cystic fibrosis, holds his hand as he lies on a hospital bed in Gaza City July 2, 2017. Picture taken July 2, 2017. REUTERS/Mohammed Salem 

Palestinian boy Mustafa Shanty (R) and his brother Mohammad, who suffer from cystic fibrosis, receive oxygen therapy during a power cut in their family house, which is equipped with a backup battery-powered system, in Gaza City July 2, 2017. Picture taken July 2, 2017. REUTERS/Mohammed Salem 

Palestinian boy Mustafa Shanty (L) and his brother Mohammad, who suffer from cystic fibrosis, sit inside a charity in Gaza City July 2, 2017. Picture taken July 2, 2017. REUTERS/Mohammed Salem 

Palestinian boy Fares Al-Jalees, who suffers from cystic fibrosis, is held by his mother Ritta as he receives oxygen supplementation therapy inside their house in Gaza City July 2, 2017. Picture taken July 2, 2017. REUTERS/Mohammed Salem 

Palestinian boy Fares Al-Jalees, who suffers from cystic fibrosis, is held by his mother Ritta as he receives oxygen supplementation therapy inside their house in Gaza City July 2, 2017. Picture taken July 2, 2017. REUTERS/Mohammed Salem 

Sarah Murnaghan (R), an 11-year-old girl who underwent a double lung transplant, sits on her mother Janet's lap outside their home in Newtown Square, Pennsylvania August 27, 2013. Sarah underwent an operation earlier this summer to receive the transplants in a case that set off a national debate about child access to organ donations. She had earlier been diagnosed with cystic fibrosis. REUTERS/Tom Milahek (UNITED STATES - Tags: HEALTH) 

Sarah Murnaghan (R), an 11-year-old girl who underwent a double lung transplant, is seen here with her parents Janet and Fran (2nd R), brothers Sean and Finn and sister Ella (obscured) outside their home in Newtown Square, Pennsylvania August 27, 2013. Sarah underwent an operation earlier this summer to receive the transplants in a case that set off a national debate about child access to organ donations. She had earlier been diagnosed with cystic fibrosis. REUTERS/Tom Milahek (UNITED STATES - Tags: HEALTH) 

Janet (L) and Fran Murnaghan, the parents of Sarah, an 11-year-old girl who underwent a double lung transplant, talk to members of the media outside their home in Newtown Square, Pennsylvania August 27, 2013. Sarah underwent an operation earlier this summer to receive the transplants in a case that set off a national debate about child access to organ donations. She had earlier been diagnosed with cystic fibrosis. REUTERS/Tom Milahek (UNITED STATES - Tags: HEALTH) 

Sarah Murnaghan, an 11-year-old girl who underwent a double lung transplant, poses with her parents Janet and Fran, brothers Sean and Finn and sister Ella outside their home in Newtown Square, Pennsylvania August 27, 2013. Sarah underwent an operation earlier this summer to receive the transplants in a case that set off a national debate about child access to organ donations. She had earlier been diagnosed with cystic fibrosis. REUTERS/Tom Milahek (UNITED STATES - Tags: HEALTH) 

Sarah Murnaghan, an 11-year-old girl who underwent a double lung transplant, sits on her mother Janet's lap outside their home in Newtown Square, Pennsylvania August 27, 2013. Sarah underwent an operation earlier this summer to receive the transplants in a case that set off a national debate about child access to organ donations. She had earlier been diagnosed with cystic fibrosis. REUTERS/Tom Milahek (UNITED STATES - Tags: HEALTH) 

Janet Murnaghan, the mother of Sarah, an 11-year-old girl who underwent a double lung transplant, receives flowers from a florist delivery man outside their home in Newtown Square, Pennsylvania August 27, 2013. Sarah underwent an operation earlier this summer to receive the transplants in a case that set off a national debate about child access to organ donations. She had earlier been diagnosed with cystic fibrosis. REUTERS/Tom Milahek (UNITED STATES - Tags: HEALTH) 

Anabel Stenzel (R) watches as her identical twin sister, Isabel Stenzel Byrnes, plays the bagpipe in Redwood City, California February 20, 2008. When born with cystic fibrosis in 1972, they were not expected to live to adulthood. Three decades and three lung transplants later, they are telling their story in a book. REUTERS/Robert Galbraith (UNITED STATES) 

Identical twins Anabel Stenzel (L) and Isabel Stenzel Byrnes pose for a photograph in Redwood City, California February 20, 2008. When born with cystic fibrosis in 1972, they were not expected to live to adulthood. Three decades and three lung transplants later, they are telling their story in a book. REUTERS/Robert Galbraith (UNITED STATES) 

Britain's Chancellor of the Exchequer Gordon Brown and his wife Sarah present their son James Fraser to photographers, as they leave the Simpson Maternity Unit at The Edinburgh Royal Infirmary in Edinburgh, in this Scotland July 21, 2006 file photo. Brown's four-month old son, Fraser, has been diagnosed with cystic fibrosis, a spokesman said on Wednesday. REUTERS/David Moir/Files (BRITAIN) 

Britain's Chancellor of the Exchequer Gordon Brown and his wife Sarah (not pictured) present their son James Fraser to photographers, as they leave the Simpson Maternity Unit at The Edinburgh Royal Infirmary in Edinburgh, in this Scotland July 21, 2006 file photo. Brown's four-month old son, Fraser, has been diagnosed with cystic fibrosis, a spokesman said on Wednesday. REUTERS/David Moir/Files (BRITAIN) 

Actor Michael Vartan (R) skates at the 2nd annual "Freeze the Disease" celebrity hockey game to benefit the Cystic Fibrosis Foundation at the Ice Station in Valencia, California July 31, 2005. REUTERS/Mario Anzuoni MA 

Actor Michael Vartan intercepts the puck during the 2nd annual "Freeze the Disease" celebrity hockey game to benefit the Cystic Fibrosis Foundation at the Ice Station in Valencia, California July 31, 2005. REUTERS/Mario Anzuoni MA 

Actor Michael Vartan intercepts the puck during the 2nd annual "Freeze the Disease" celebrity hockey game to benefit the Cystic Fibrosis Foundation at the Ice Station in Valencia, California July 31, 2005. REUTERS/Mario Anzuoni MA 

Actor Enrico Colantoni smiles during the 2nd annual "Freeze the Disease" celebrity hockey game to benefit the Cystic Fibrosis Foundation at the Ice Station in Valencia, California July 31, 2005. REUTERS/Mario Anzuoni MA/JK 

Actor Michael Vartan (L) gives the thumbs up at the 2nd annual "Freeze the Disease" celebrity hockey game to benefit the Cystic Fibrosis Foundation at the Ice Station in Valencia, California July 31, 2005. REUTERS/Mario Anzuoni MA 

Actors Jason Priestley (R) and Enrico Colantoni talk at the 2nd annual "Freeze the Disease" celebrity hockey game to benefit the Cystic Fibrosis Foundation at the Ice Station in Valencia, California on July 31, 2005. REUTERS/Mario Anzuoni MA 

Actor Jason Priestley skates during the 2nd annual "Freeze the Disease" celebrity hockey game to benefit the Cystic Fibrosis Foundation at the Ice Station in Valencia, California July 31, 2005. REUTERS/Mario Anzuoni MA 

Actor Michael Vartan poses at the 2nd annual "Freeze the Disease" celebrity hockey game to benefit the Cystic Fibrosis Foundation at the Ice Station in Valencia, California July 31, 2005. REUTERS/Mario Anzuoni MA/JK 

Actor Michael Vartan (R) skates with the puck during the 2nd annual "Freeze the Disease" celebrity hockey game to benefit the Cystic Fibrosis Foundation at the Ice Station in Valencia, California on July 31, 2005. REUTERS/Mario Anzuoni MA/JK 

Actor Michael Vartan intercepts the puck during the 2nd annual "Freeze the Disease" celebrity hockey game to benefit the Cystic Fibrosis Foundation at the Ice Station in Valencia, California July 31, 2005. REUTERS/Mario Anzuoni MA/JK 

Michael Vartan skates during the Freeze the Disease celebrity hockey game to benefit the Cystic Fibrosis Foundation at the Ice Station in Valencia, California. Actor Michael Vartan skates during the 2nd annual "Freeze the Disease" celebrity hockey game to benefit the Cystic Fibrosis Foundation at the Ice Station in Valencia, California on July 31, 2005. REUTERS/Mario Anzuoni 

Jason Priestley during the Freeze the Disease celebrity hockey game to benefit the Cystic Fibrosis Foundation at the Ice Station in Valencia, California. Actor Jason Priestley looks on as he skates during the 2nd annual "Freeze the Disease" celebrity hockey game to benefit the Cystic Fibrosis Foundation at the Ice Station in Valencia, California on July 31, 2005. REUTERS/Mario Anzuoni 

Jason Priestley intercepts Michael Vartan during the Freeze the Disease celebrity hockey game at the Ice Station in Valencia, California. Actor Jason Priestley (white) intercepts Michael Vartan during the 2nd annual "Freeze the Disease" celebrity hockey game, to benefit the Cystic Fibrosis Foundation, at the Ice Station in Valencia, California on July 31, 2005. REUTERS/Mario Anzuoni 

Jason Priestley looks on as he skates during the Freeze the Disease celebrity hockey game at the Ice Station in Valencia, California. Actor Jason Priestley looks on as he skates during the 2nd annual "Freeze the Disease" celebrity hockey game, to benefit the Cystic Fibrosis Foundation, at the Ice Station in Valencia, California on July 31, 2005. REUTERS/Mario Anzuoni 

Britain's Prime Minister Tony Blair talks to cystic fibrosis patient
Estelle Emberton on the Christine Brown ward as he visits King's
College Hospital in south London, September 23, 2003. Blair visited the
hospital on Tuesday to see the Golden Jubilee Wing, a 60 million pound
($99 million) Private Finance Initiative (PFI) project funded by
Hospital Partnerships Consortium. REUTERS/Peter Macdiarmid

PKM/ASA 

Aaron Szabo, of Columbia, Maryland, throws a ball while working a match at the U.S. Open in New York September 1, 2000. Szabo, who has cystic fibrosis, is attempting to become the first ballboy to work all four of the Grand Slam tournaments. He has worked the Australian Open and now the U.S. Open.

PJ/HB 

German President Johannes Rau and his wife Christina take part in a funeral service for Christiane Herzog, wife of former German president [Roman Herzog] in Dachau near Munich June 23. Christiane Herzog, 63, died of cancer on June 19 in Munich. Well-liked by the German public, she was best known as founder of a national group to help victims of cystic fibrosis and activities in the U.N. Children's Fund. 

Former German president Roman Herzog stands behind the flower-covered coffin of his wife Christiane during a funeral service in Dachau near Munich June 23. Christiane Herzog, 63, died of cancer on June 19 in Munich. Well-liked by the German public, she was best known as founder of a national group to help victims of cystic fibrosis and activities in the U.N. Children's Fund.

AKW 

Former German president Roman Herzog stands under an umbrella during the funeral service for his wife Christiane in Dachau near Munich June 23. Christiane Herzog, 63, died of cancer on June 19 in Munich. Well-liked by the German public, she was best known as founder of a national group to help victims of cystic fibrosis and activities in the U.N. Children's Fund.

AKW/ME 

Former German President Roman Herzog is accompanied by Friedel Kraus (L), mother of his wife Christiane during a funeral service in Dachau near Munich June 23. Christiane Herzog, 63, died of cancer on June 19 in Munich. Well-liked by the German public, she was best known as founder of a national group to help victims of cystic fibrosis and activities in the U.N. Children's Fund.

AKW/ME 

Doris Schroeder-Koepf (L) wife of German Chancellor Gerhartd Schroeder and Marianne von Weizsaecker, wife of former German President Richard von Weizsaecker arrive at a funeral service for Christiane Herzog, wife of former German president Roman Herzog in Dachau near Munich June 23. Christiane Herzog, 63, died of cancer on June 19 in Munich. Well-liked by the German public, she was best known as founder of a national group to help victims of cystic fibrosis and activities in the U.N. Children's Fund.

AKW 

German President Johannes Rau and his wife Christina take part in a funeral service for Christiane Herzog, wife of former German president Roman Herzog in Dachau near Munich June 23. Christiane Herzog, 63, died of cancer on June 19 in Munich. Well-liked by the German public, she was best known as founder of a national group to help victims of cystic fibrosis and activities in the U.N. Children's Fund.

AKW 

Former German president Roman Herzog stands behind the flower-covered coffin of his wife Christiane during the funeral service in Dachau near Munich June 23. Christiane Herzog, 63, died of cancer on June 19 in Munich. Well-liked by the German public, she was best known as founder of a national group to help victims of cystic fibrosis and activities in the U.N. Children's Fund.

AKW 

Former German president Roman Herzog stands under an umbrella during the funeral service for his wife Christiane in Dachau near Munich June 23. Christiane Herzog, 63, died of cancer on June 19 in Munich. Well-liked by the German public, she was best known as founder of a national group to help victims of cystic fibrosis and activities in the U.N. Children's Fund.

AKW 

People sign the book of condolence to former German president Roman Herzog to express their grief over the death of Herzog's wife Christiane in Munich, June 21. Christiane Herzog, 63, the wife of former German president Roman Herzog, died of cancer June 19 in Munich. Well-liked in the German public, she was best known as founder of a national group to help victims of cystic fibrosis and activity in the U.N. Children's Fund.

MAD 

THE BOOK OF CONDOLENCE ABOUT THE DEATH OF THE WIFE OF FORMER GERMAN PRESIDENT ROMAN HERZOG IS PLACED IN MUNICH.


The picture shows a book of condolence for former German president Roman Herzog to express the grief over the death of Herzog's wife Christiane, placed in Munich, June 21. Christiane Herzog, 63, the wife of former German president Roman Herzog, died of cancer June 19 in Munich. Well-liked by the German public, she was best known as founder of a national group to help victims of cystic fibrosis and activities in the U.N. Children's Fund. 

Christiane Herzog (L), wife of the German President Roman Herzog, receives the "BAMBI 1998" media award from Lea Rabin, widow of murdered Israeli President Rabin in Karlsruhe November 7.Christiane Herzog was honoured with the BAMBI 1998 Charity National Award for her performance as the founder and patron of the Foundation for Cystic Fibrosis. 

Christiane Herzog (L), wife of the German President Roman Herzog, receives the "BAMBI 1998" media award from Lea Rabin, widow of murdered Israeli President Rabin in Karlsruhe November 7.Christiane Herzog was honoured with the BAMBI 1998 Charity National Award for her performance as the founder and patron of the Foundation for Cystic Fibrosis.

ROR/WS 

Legendary singer Art Garfunkel holds 3 year-old Cystic Fibrosis sufferer Hannah Plowman June 3 after a news conference about his upcoming UK tour which will raise money for the Cystic Fibrosis Trust. Garfunkel, whose career has spanned 40-years, will perform at eight venues in Britain this month. The card Garfunkel holds was given to him by Hannah. 

Legendary singer Art Garfunkel holds 3 year-old Cystic Fibrosis sufferer Hannah Plowman June 3 after a news conference about his upcoming UK tour which will raise money for the Cystic Fibrosis Trust. Garfunkel, whose career has spanned 40-years, will perform at eight venues in Britain this month. The card Garfunkel holds was given to him by Hannah.

KL/GB 

Diana, Princess of Wales meets young cystic fibrosis sufferers during a visit to the Royal Brompton Hospital to coincide with Cystic Fibrosis Week April 15. 

Cystic fibrosis sufferer Nicky Welsh points to her daily pill intake during a chat with the Princess of Wales, April 15, at the Royal Brompton Hospital. Diana made a visit to highlight the beginning of Cystic Fibrosis Week. 

Cystic fibrosis sufferer Nicky Welsh points to her daily pill intake during a chat with the Princess of Wales, April 15, at the Royal Brompton Hospital. Diana made a visit to highlight the beginning of Cystic Fibrosis Week.

BRITAIN 

The Princess of Wales meets young cystic fibrosis sufferers during a visit to the Royal Brompton Hospital to coincide with Cystic Fibrosis Week April 15.

BRITAIN 

EDITORIAL USE ONLY - NO COMMERCIAL OR BOOK SALES. Greek local priest, Father Pavlos, welcomes Britain's Princess Diana to Limni, a coastal town on Evia, northeast of Athens, on September 18. Diana attended the funeral of Yannis Kalyviotis, 27, who died in London at the weekend of cystic fibrosis, a non-contagious, hereditary disease. 

EDITORIAL USE ONLY - NO COMMERCIAL OR BOOK SALES. Britain's Princess Diana arrives to Limni, a coastal town on Evia, northeast of Athens, on September 18. Diana arrived on Evia to attend the funeral of Yannis Kalyviotis, 27, who died in London at the weekend of cystic fibrosis, a non-contagious, hereditary disease. 

EDITORIAL USE ONLY - NO COMMERCIAL OR BOOK SALES. Britain's Princess Diana arrives at a funeral ceremony at the local church in Limni, a coastal town on Evia, northeast of Athens, on September 18. Diana arrived on Evia to attend the funeral of Yannis Kalyviotis, 27, who died in London at the weekend of cystic fibrosis, a non-contagious, hereditary disease. 

EDITORIAL USE ONLY - NO COMMERCIAL OR BOOK SALES. Greek local priest, Father Pavlos, leads Britain's Princess Diana at a funeral prosession in the village of Limni on September 18. Diana attended the funeral of Yannis Kalyviotis, 27, who died in London at the weekend of cystic fibrosis, a non-contagious, hereditary disease. 

The Duchess of York accepts flowers from six-year-old cystic fibrosis patient Walter Martinez of Santa Monica, California as the Duchess arrives for a visit at Children's Hospital in Los Angeles, October 28 

Stacy Sewell,21, of Quartz Hill,California,a cystic fibrosis patient who successfully underwent the world's first double lobar lung transplant in January 1993 answers questions at a news conference prior to her release March 5 from USC University Hospital in Los Angeles. Sewell's parents donated portions of their lungs for the transplant